What to expect after a dementia diagnosis - your follow-up appointments

Receiving a diagnosis of dementia can be overwhelming, but knowing what to expect next can help you feel more in control. After your diagnosis, you'll have a series of follow-up appointments with healthcare professionals to help you manage your condition and maintain the best possible quality of life. Here’s a simple guide to what those appointments might involve.

1. Initial follow-up with your GP or specialist

After your diagnosis, you’ll likely have an initial follow-up appointment with your GP or the specialist who diagnosed you. During this visit, they’ll discuss your treatment options, including any medications that might help manage your symptoms. They will also talk about what you can do to stay healthy and active.

2. Regular check-ups

You will have regular check-ups to monitor your condition. These might be every six months or annually, depending on your situation. During these appointments, your doctor will check how your symptoms are progressing, adjust medications if needed, and discuss any new concerns you or your family might have.

3. Memory clinics

Many people with dementia attend memory clinics, which are run by specialists in dementia care. At these clinics, you might have tests to see how your memory and other mental abilities are doing. You’ll also get advice on managing everyday tasks and staying independent for as long as possible.

4. Support from a dementia advisor or nurse

You might also be assigned a dementia advisor or nurse, who can be a valuable source of ongoing support. They can provide you and your family with information about the condition, help connect you with local services, and offer advice on how to cope with the challenges you may face.

5. Social services assessment

As your condition progresses, you may need more support at home. Social services can assess your needs and arrange for services like home care, meals on wheels, or adaptations to your home. Your doctor or dementia nurse can refer you for this assessment.

6. Specialist referrals

If needed, your doctor might refer you to other specialists, such as occupational therapists, physiotherapists, or psychologists. These professionals can help with specific issues, like mobility, mental health, or managing daily activities.

While there will be challenges ahead, you won’t be facing them alone. Your follow-up appointments are there to ensure you get the care and support you need at every stage. Don’t hesitate to ask questions during these appointments—your healthcare team is there to help you navigate this journey.

Sources: Dementia UK, Alzheimer’s Society, NHS