Telling your employer you have dementia

Telling your employer about your dementia diagnosis can feel daunting, but being open can help you get the support you need at work. Here’s a friendly guide to help you have this important conversation.

Plan ahead

Before you talk to your employer, it’s helpful to plan what you want to say. Think about:

- The main points you want to cover.

- How dementia affects your work.

- What kind of support or adjustments you might need.

Choose the right time and place

Pick a quiet and private place to have the conversation. Ensure you have enough time to discuss your situation without feeling rushed.

Be honest and clear

Explain your diagnosis in a straightforward way. You might say:

- "I’ve been diagnosed with dementia. It affects my memory and thinking, which can impact my work."

- "I wanted to let you know so we can discuss how to manage my workload and any adjustments I might need."

Focus on your abilities

While it’s important to explain the challenges, also talk about what you can still do well. Emphasise your skills and strengths:

- "I’m still capable of doing my job, but I might need some help with certain tasks."

- "With a few adjustments, I can continue to contribute effectively."

Discuss possible adjustments

Suggest some adjustments that could help you at work. These might include:

- Flexible working hours.

- Clear instructions or written summaries of meetings.

- A quieter workspace to help with concentration.

- Regular check-ins to discuss your workload and any concerns.

Provide information

Offer to share information about dementia with your employer. This can help them understand your condition better. 

Know your rights

It’s important to know that you have rights at work. Under the Equality Act 2010, dementia is considered a disability, and employers are required to make reasonable adjustments to help you do your job. 

Be open to ongoing conversations

Let your employer know that you’re open to ongoing discussions. As your needs might change over time, keeping the lines of communication open is important:

- "I’m happy to have regular check-ins to see how things are going and discuss any further support I might need.

Final thoughts

Telling your employer about your dementia diagnosis can feel challenging, but it’s a positive step towards getting the support you need. Remember to be honest, clear, and proactive in suggesting adjustments that can help you continue to do your job effectively.

Sources: Dementia UK, Alzheimer’s Society