How to tell your family you've been diagnosed with dementia

Finding out you have dementia can be overwhelming and scary. One of the hardest parts can be telling your family. Here are some suggestions to help make this conversation a little easier.

Prepare yourself

Before you talk to your family, take some time to understand your diagnosis. Learn about what dementia is and what it means for you. It might help to write down your thoughts and questions.

Choose the right time and place

Pick a quiet time when you won’t be interrupted. Make sure everyone can focus on the conversation. You might want to have the conversation at home or somewhere you all feel comfortable.

Be honest and clear

It’s important to be straightforward. You could start by saying something like, “I have something important to tell you. I’ve been diagnosed with dementia.” Explain what this means in simple terms. You can say, “Dementia affects my memory and thinking, and I will need extra support in the future.”

Share your feelings

Tell your family how you feel about the diagnosis. It’s okay to say if you’re scared, sad, or confused. Sharing your feelings can help your family understand what you’re going through.

Expect different reactions

Everyone will react differently. Some might be shocked or sad, others might not know what to say. Give them time to process the news. Remember, their initial reaction might change as they learn more and come to terms with it.

Ask for help and support

Let your family know what kind of support you need. This might be emotional support, help with daily tasks, or going with you to doctor’s appointments. Be specific about what would help you the most.

Stay positive and open

While this is a difficult time, try to stay positive. Remind your family that you’re still you, even though you have dementia. Keep communication open and encourage them to ask questions and share their feelings too.

Seek professional support

If you’re struggling with the conversation, consider asking a professional for help. A doctor, therapist, or seek advice from a dementia support group who can offer guidance and support for you and your family.

Talking about a dementia diagnosis is never easy, but taking these steps can help make the conversation a bit smoother. Remember, you’re not alone—there are many resources and people who can help you and your family through this journey.

Sources: Dementia UK, Alzheimer’s Society