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Support

Where to look for support when you’re living with dementia

Even the most independent people need help at times – and when you’re living dementia it’s important to accept support when you need it.

One of the big changes that comes with a dementia diagnosis is accepting that you are going to need help at some stage in the coming months and years.

While it may not sit well with you to ask for support, it’s important that you start to think about who might be there to help you with areas of your life, including:

  • Practical – help with day-to-day living/caring

  • Emotional – support with your feelings and how they might change

  • Social – assistance to get out and about and be with others

  • Financial – help sorting out your money now and future financial planning

  • Legal – someone to help you get your legal affairs in order

You might have a loved one to rely on, or family that are very close. Or you might have a trusted friend who can help you – but you might also need a network of support, because of the wide range of changes that dementia can bring.

This means that one person may not be able to help with everything – and they are likely to need support, too.

Who can help

Seek support from your GP, dementia clinic or social worker, if you have one. There’s also a range of organisations that can help.

For support with your dementia diagnosis and any issues connected with it try contacting:

Chat with people who understand

It’s sometimes useful to chat online with others who know and understand exactly what you’re going through. Some people find it easier to be honest with others they don’t know in real life and the beauty of an online chat forum is that it’s anonymous and available around the clock.

Check out the conversations going on about dementia support

Get social, get support

Getting out and about and meeting others is important for your wellbeing and can help you to feel more supported. You can read more about the benefits of socialising here <link to Wellbeing> but research shows that isolating yourself will not help your symptoms and could even make them worse.

 There are a lot of ways you can connect with others for support. From hobbies, interests and activities to volunteering or just meeting others for a cuppa and a chat, find out what’s going on in your area for ideas.

Support for loved ones

You might be worried about the impact on your diagnosis on someone you love. Help is available for those living with or caring for someone with a dementia diagnosis, including Dementia UK’s helpline. They can get in touch with an Admiral Nurse and discuss their concerns on 0800 888 6687 or email helpline@dementiauk.org to find out more.

Read more about the support that’s available for carers