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Claim your benefits

I have dementia – am I entitled to any benefits?

You might find that having dementia affects your ability to earn or brings unexpected costs. But you could be eligible for financial help…

Learning that you’re living with dementia raises lots of questions around how your diagnosis will affect you financially.

If you’re working you might have to consider reducing your hours. You could think about working towards a managed or phased retirement – and that might mean retiring earlier than you anticipated and managing on a lower income and/or a smaller pension pot.

If you’re no longer working you might find that you need to make changes to your home and lifestyle, which could bring unexpected cost. And you will also need to think about how you will be pay for care in the future – you can read more about that here

What benefits might I be entitled to?

It might seem overwhelming right now, but there are a range of discounts, grants and state benefits that you might be able to access.

Start by applying to your local council for a needs assessment – bear in mind that it can take a while to get the ball rolling, so the sooner you apply, the better. You can start the process here

In the meantime check what you might be entitled to and consider asking a trusted loved one to help you.

You can also get help with this by chatting to the Alzheimer’s Society on 0333 150 3456 or by calling Age UK on 0800 169 2081. You’ll find more useful contacts at the end of this article, including links to handy benefits calculators – click here to go straight there.

Below, is an overview of the type of benefits available to you if you’re living with dementia, but of course, much depends on your personal circumstances:

Attendance Allowance

Are you over 65 and need help with personal care? You might be eligible for an Attendance Allowance of between £68 and £102 per week* depending on what type of care you need.

Personal Independence Payment

If you’re under state pension age and need help with everyday tasks due to your dementia you could be entitled to claim for a Personal Independence Payment (commonly known as PIP, for short). It has two elements – one for daily living and one for mobility.

Carer’s Allowance

If you have someone who looks after you for more than 35 hours a week they could be entitled to a Carer’s Allowance of around £76 per week but they need to be earning less than £100 a week in order to claim and can’t be in full-time education. Learn more here

NHS Continuing Healthcare

This is a package of care that you might be able to access to help with your ongoing needs as your dementia progresses. You can read more about it here

Is there anything else I can claim for?

  • Free home assessments

    You’re eligible for a free home assessment to help you to continue to live as independently as possible. Once an assessment has been carried out, if the home adjustments recommended total less than £1,000, you can get them done for free. Read more and apply here

  • Discounted council tax

    If you’re receiving disability benefits you might be able to get 25% off your council tax bill, which could save you on average £400 a year. Find out more here

  • Meals on Wheels

    Some councils provide a meal delivery service – but much depends on the area you live in. Check your local authority website for information or add your postcode to the area checker here

  • Grants

    Once you’ve applied for the benefits you’re entitled to you can also apply for a grant from a charity or trust via Carers UK to help with any equipment, home repairs, house moving costs or unexpected bills.

If you’re finding applying for benefits stressful or confusing, try the following organisations for free advice:

  • Alzheimer’s Society 0333 150 3456

  • Age UK 0800 169 2081

  • Citizens Advice 0800 144 8848 (or 0800 702 202 if you live in Wales)

  • Carers UK carersuk.org

  • Carers Trust carers.org

  • Turn2us has a benefits calculator here and they also offer anonymous and confidential advice.

Find out more about financial help for you and anyone who helps to look after you here and share advice about benefits and financial help with others on our forum here

*Correct as of August 2024